Calling the doctor is not the only medical-related use for a cell phone.
With the proliferation of smart phones, mobile devices now are being used to gather, track and manage medical and health information, particularly by young adults, according to a survey by the Pew Internet Project. The survey showed that 17 percent of all cell owners have used their phone to look up health or medical information on the Internet, with 29 percent of cell owners ages 18 to 29 doing such searches.Also, 9 percent of all cell owners have software applications — or “apps” — on their phones that help them track or manage their health. The heaviest use of health or medicine-related apps was by young adults: about 15 percent of those age 18 to 29 have such apps, compared with 8 percent of cell users ages 30 to 49.Health and medicine-related apps vary widely from workout and food trackers to personal health record-keepers. The Cleveland Clinic, for example, has a free app that provides a daily health tip or a $1.99 app that offers ways to de-stress through meditation. Both are available in the iTunes store.Dan Young, owner of DXY Solutions, a mobile-application-building company in Cleveland, said he expects more and more people will be accessing health information online. Health care providers should recognize the trend and make sure their Web content is designed to work with mobile platforms, Young said.As for phone apps, security is extremely important, Young said. Phones “cache” or store data so that future requests for that data are answered faster. That could spell trouble for someone who loses a cell phone that contains medical-records apps or other sensitive information.Young said health-care providers — and cell phone users — should make sure such information can be erased remotely or be password-protected. “It’s prudent that people think about those issues,” he said.The Pew survey also showed that:57 percent of American adults have a wireless connection and use a laptop or cell phone to access the Internet. Black consumers were more likely than other groups to use mobile health apps.Urban cell phone owners were more likely than those who live in suburban or rural areas to have such an app on their phone.Most adults’ searches for health information, however, remains anchored in the offline world, the survey report said. “Most people turn to a health professional, friend or family member when they have a health question,” the survey report said. “The Internet plays a growing but still supplemental role — and mobile connectivity has not changed that.” The survey was conducted among 3,001 adults in August and September. The Pew Internet Project is a nonprofit, nonpartisan research center based in Washington, D.C.Wednesday, November 3, 2010
Friday, October 29, 2010
Remainder of MDG Medical Inc. moving to Cleveland from Israel
Friday, October 15, 2010
AT&T, Verizon may have to alert customers near useage limits under FCC proposal
Willoughby shop opposes FDA plan to require safety tests of e-cigarettes
EXPLAINING E-CIGS
- What are they?
Electronic cigarettes, or e-cigarettes, are products designed to mimic cigarettes and deliver nicotine to the user in the form of a vapor, which the user inhales.
- Where are they sold?
- What's the FDA's beef?
Monday, October 11, 2010
Family culture helps agency do better work
David Rosenberg, 55, is president of Rosenberg Advertising, a Lakewood company he founded in 1981 with one employee – himself – and one client. Today, the full-service marketing and advertising firm employs 14 and has served more than 200 clients. Since 1997 Rosenberg's company has dwelled in an unusual office space: a renovated three-story, century-old home in Lakewood. These are excerpts from a recent chat between Rosenberg and Plain Dealer reporter Kaye Spector.
The Question: How would you describe your company's culture?The Answer: It starts with having the atmosphere here, which is part of the house itself.I moved here from the Warehouse District and was looking for something that I liked but was also our brand. Our brand is the fact that we do have this family culture, which we think helps us to do better work. We have a magnolia tree outside. In our brand now we show the tree. We think the tree is very symbolic: fresh ideas, honest roots.The honest roots comes in with how our culture is. We believe we are the roll-up-your-sleeves-and-work-hard mentality. The Question: Making hiring decisions is particularly important in a small business. How do you choose new hires?The Answer: First I try to identify what we need, the skill that we need. We want to make sure we hire somebody who has the skill to do the job. But then, once that is given, that’s where the culture part comes in. We’re looking for the right person. We are looking for someone we feel we could see as a good team member and who has the same can-do attitude. This is not a business where only I know the clients. Our clients know the people who work on their accounts. So we visualize, ‘Does this person represent us well, do they have the right type of spirit?’ ”The Question: What’s the most important thing you’ve learned about management? The Answer: Some people say the advertising business is an idea business or a communication business. I definitely realize we are a people business.But even before that, you have to have the right mix. We basically start with a blank piece of paper every day and it’s the people who fill it in. If you get the people part right, you’re going a long way to establishing a successful business. The Question: You allow your employees to work from home a day or two a week. What made you decide to do that?The Answer: When I started the business, everybody had to start work at 8:30 and leave at 5:30 and take an hour lunch. And if they came in at 8:35, then I was not happy. I realize now flexibility is huge in people’s lives. And so we came up with a schedule that would provide us with enough face-to-face time together so that we can do what we do.We figured out the technology, which wasn’t that hard to do. The phones roll over to a cell phone at home. With e-mail and technology we still can communicate very well. There’s enough face time where I feel we have not lost anything in terms of what we need to do to be productive, proactive and good at our jobs. And I realized our work gets done. It gets done just as well.The Question: : What did you gain from such a schedule? The Answer: I think people were dedicated before, but I definitely feel that they are happier. I think their stress level went down a tad.My job is to provide them the right environment so they can do their best work. The Question: How do you foster creativity?The Answer: We all get along here and I think people are open to talking and disagreeing, just communicating with each other. That is what we do, but it spawns creativity. Creativity is basically allowing any idea to come out, and then collectively you figure out what can we work with, what can we not work with. The open communication goes a long way into being open to come up with good work. If I want to get a meeting moving and sometimes the ideas aren’t good, I catch myself saying, “That’s not a good idea,” and I know better. That is so counterproductive.Sometimes a bad idea spawns a good idea, which spawns a great idea. If at the core, people get along and can talk with each other, that’s not fancy but that’s how we do good work and get creative ideas.Friday, October 1, 2010
Right from the crib, children hear advertising promoting unhealthy food and drinks
Thursday, September 30, 2010
Cleveland Indians court digerati with Tribe Social Deck
way."
Litten said that before accepting the invitation, he checked with the Indians and received assurances that he had complete freedom to say what he wanted about the game. Other online commenters will occasionally moan over a bad play. But most are polite.
Litten said the deck is a smart move for an organization trying to connect with an online audience that can be negative when the home team is losing.
Tuesday, September 28, 2010
Continental's free meals reach the end of the line
Say goodbye to free tiny pretzels and cold cereal Oct. 12 when Continental Airlines begins charging economy-class passengers for food on most domestic flights.
Continental, the biggest carrier in Cleveland, was the last airline to provide meals without a separate charge for all its travelers. United Airlines, which will merge with Continental on Friday, started charging for snack boxes in 2005. Continental's move to a pay menu for some travelers means “Continental is now offering uniform product with other competitors,” said William Swelbar, a researcher at MIT International Center for Air Transportation. “Meals were among the first thing to be cut back when the industry was looking to reduce costs,” he said. “Everyone followed suit. This has been a process by the airlines over the years.”Monday's announcement gives more details and a date for the move, which was first announced in March. Continental will still have free food in coach on international flights, as well as on domestic flights longer than 6½ hours.First-class and BusinessFirst passengers will be unaffected.All travelers will still receive nonalcoholic beverages at no charge. Menu prices will range from $1.50 for a package of Pringles Original to Potato Crisps to $8.25 for a grilled chicken spinach salad.The purchase menu also will include hot and cold dishes, such as an Asian-style noodle salad, an Angus cheeseburger, and a Jimmy Dean sausage, egg and cheese sandwich. Snacks and desserts will include a gourmet cheese and fresh fruit plate, several types of snack boxes, a la carte brand-name snacks and chocolate-covered Eli's Cheesecake on a stick.The new menu was developed with feedback from customers, who said they wanted more food choices on flights, Sandra Pineau-Boddison, Continental vice president of food services, said in a news release. The airlines researched trends in the restaurant industry and tested a broad range of menu items, Pineau-Boddison said.In announcing the move in March, the airline said it was eliminating some free meals because travelers no longer choose an airline based on the no-charge breakfasts, sandwiches, hot meals and desserts. Continental expects to save $35 million a year from the move and see more revenue from the food-for-purchase program.Air travelers have seen a steady unbundling of services they used to get for free, from checked bags to pillows and blankets on board. Part of the reason is that airfares have not kept up with the rate of inflation and the price of oil, Swelbar said.“It's really those cost inputs that have crowded out the superfluous offering of food,” Swelbar said. “Unfortunately, those little things are what gets cut.”Parents jam phone lines, websites in wake of powdered Similac recall
Monday, September 20, 2010
Welcome to Northeast Ohio, aka the Medical Capital
Monday, September 13, 2010
Woman who got face transplant at Cleveland Clinic has normal life again, doctor says
Friday, September 10, 2010
Creating a better hospital gown: Von Furstenberg helps Cleveland Clinic with the design
Thursday, September 9, 2010
Dim and Den Sum food truck now a fixture at the Cleveland Clinic farmers market
By Kaye Spector
Plain Dealer Health and Medical Writer
Setting up his Dim and Den Sum food truck at the Cleveland Clinic’s farmers market was a no-brainer for chef Chris Hodgson.
After all, he uses only fresh ingredients, grown or raised locally, just like what’s sold at the farmers market. Hodgson also likes the idea of serving — and selling — well-prepared food to the people from whom he bought the ingredients.And then there’s the sheer number of potential customers: nearly 22,000 Clinic employees at the main campus, where the farmers market will continue for the next four Wednesdays this year.That’s a lot more fish tacos and blue burgers than Dim and Den Sum sells at some of its other haunts, like late at night outside the Flying Monkey in Tremont or the Happy Dog in the Detroit Shoreway neighborhood.The Clinic invited Hodgson, his three helpers and his revamped FedEx truck to its main-campus farmers market to induce people other than hospital employees to patronize the weekly event.The market was created as a way to offer nutritious food to Clinic employees, patients and visitors as well as residents of the surrounding Fairfax neighborhood, where it’s difficult to find fresh food.But a few things had to happen before the truck could participate. Hodgson had to retool his high-end menu to comply with Clinic guidelines for food sold on its premises: No trans fat, no added sugar, no high fructose corn syrup, no fried foods.That meant Dim and Den Sum couldn’t serve its signature dish: handmade tater tots, served with fancy sauces. “We had a huge following, just for tater tots,” Hodgson says.Hodgson and his crew took the potato treats off the menu. Each week they instead create three Clinic-friendly side dishes. On Wednesday, there was couscous with almonds, cilantro, red onion and cranberries; a Greek-yogurt parfait with almonds, granola and Ohio honey; and corn salad with smoked carrots and basil.Because Dim and Den Sum is a movable feast, the business has to get the word out often and quickly about where it’s going to set up shop and what’s going to be sold, both of which change from day to day and, sometimes, on short notice.Its fans keep track of Dim and Den’s movements and menu by “liking” the business on Facebook, checking on dimanddensum.com or following @DimAndDenSum on Twitter.A tweet brought Caitlin Hooi, 28, to the farmers market on Wednesday. She made a detour from her home in North Ridgeville to her business in the Detroit-Shoreway neighborhood to lunch at the food truck.Hooi, who had never been to the Clinic farmers market, was disappointed she couldn’t buy any tater tots. “It makes me very sad. They’re amazing,” she said, laughing while waiting for her gourmet burger topped with blue cheese, sweet slaw and lettuce.Hodgson is hoping to compete in the Food Network’s “The Great Food Truck Race.” As of Wednesday, fans who voted for Dim and Den Sum on the Food Network’s website (foodnetwork.com/the-great-food-truck-race) have put the business in third place.The main-campus market, operated by the North Union Farmers Market, is open Wednesdays from 10:30 a.m. to 2:30 p.m. through Oct. 6.Tuesday, August 17, 2010
Fear, frustration fuel the spread of myths about cancer causes
.
Tuesday, August 3, 2010
Raw veggies can pack a punch, but cooking can unlock some key benefits
Monday, August 2, 2010
Cleveland Clinic targets added sugar in effort to make its food, drinks healthier
Wednesday, July 14, 2010
Clinic joins pledge to buy meat raised without antibiotics
The Clinic is among nearly 300 hospitals that have signed a pledge with the international environmental coalition Health Care Without Harm to buy only meat raised without antibiotics.
All the meat dished up to Clinic patients throughout the system and sold in its cafeterias is to be antibiotic-free, under specifications given to the Clinic’s food service provider, AVI Food Systems, said Bill Barum, the hospital’s senior director of hospitality.
“It was to align ourselves with all the appropriate actions that have been going on in the line of food supply: responsible supply, responsible growing — basically everything to do with sustainability and environmental strategy,” he said. “It played very well into our mission statement. We have to walk the talk.”
The antibiotic-free promise is part of an eight-point pledge that includes purchasing locally raised food and minimizing or reusing food waste.
Health Care Without Harm and the Pew Campaign on Human Health and Industrial Farming publicized signers of the pledge on Tuesday to take aim at the practice of giving antibiotics to healthy animals being raised for meat. The U.S. House Energy and Commerce Subcommittee on Health will hold a hearing today on the use of antibiotics in animal agriculture.
Up to 70 percent of antibiotics sold in the United States are routinely fed to healthy poultry or livestock to promote growth and weight gain, the Pew campaign said.
“This is an extremely dangerous practice,” said Dr. Lance Price, director of the Translational Genomics Research Institute’s Center for Metagenomics and Human Health in Flagstaff, Ariz. “It hastens the day when our antibiotics fail.”
Late last month, the Food and Drug Administration released a draft of voluntary guidelines in which the agency acknowledged that antibiotic use for growth promotion is inappropriate.
The two groups support legislation pending in Congress to reform reporting and monitoring requirements for drug manufacturers and food producers and to curtail the use of antibiotics on industrial farms for healthy animals.
Tuesday, July 6, 2010
Expansion of University Hospitals program brings health care home to Slavic Village
The widow's adult sons moved in to take care of her around the clock: Lee, who works evenings, is there with her in the morning and afternoons; his younger brother Daniel works days and is there with her in the evenings.
Although she was home, Trudy Greene still needed lots of medical attention. But trips to the doctor's office were arduous. For a while, she had a breathing tube in her throat and she needed to bring an oxygen tank with her. The sons called a private ambulance or carried her themselves down the steps leading out of the house and into a car.
But a recent expansion of University Hospitals Case Medical Center's House Calls program to Cleveland's Slavic Village neighborhood means that Greene no longer has to leave home to see her doctor. Instead, the physician comes to her. And, when needed, a nurse, nurse practitioner or social worker can visit as well.
The $55 million foundation, created through the 2007 minority public stock offering of Slavic Village-based Third Federal Savings & Loan, supports charitable organizations in the communities in which it operates.
The foundation is a major supporter of the Cleveland School District, Cleveland Central Catholic High School, the Boys & Girls Clubs of Cleveland, University Settlement and Habitat for Humanity and has made numerous grants focused on education and community redevelopment efforts to smaller institutions.
Third Federal spokeswoman Jennifer Rosa said via e-mail that the foundation chose the University Hospitals program because of its good track record in other neighborhoods.
“By investing in this program, we can give back to an elderly population that has given so much to Cleveland and Northeast Ohio,” she said.
Patients in the program are frail and fragile, said Dr. Peter DeGolia, House Calls' medical director. They represent the 15 percent of Medicare recipients who spend 85 percent of Medicare dollars in the last two years of life, he said.
“We work closely with patients and caregivers to help people remain where most people want to be – in their home,” DeGolia said.
Trudy Greene has lived in the Cullen Drive house, its living room adorned with childhood photos of her two sons, since 1996. Her husband died in 1997.
Bottles of hydrogen peroxide and moisturizing lotions sat behind glass doors on shelves that formerly housed china and tchotchkes. An oxygen tank stood in the corner.
Friday, June 25, 2010
Study: Wash reusable grocery bags to avoid bacteria
A new study, in which researchers randomly tested 84 reusable grocery bags carried by shoppers in Tucson, Los Angeles and San Francisco, found that more than half of the bags were contaminated with food-borne bacteria.
Twelve percent was E. coli, a bacterium that can cause food poisoning. While abdominal cramps and diarrhea are most common, serious – sometimes life-threatening – complications can develop, especially among young people and older adults.
Ninety-seven percent of the shoppers in the study said they do not wash their bags, nearly all of which were made of woven polypropylene.
“If you're going to use these bags, you need to take care of them,” the study's co-author, Charles Gerba, said Thursday. “The last thing you want to do is grow salmonella in your sack.”
The main concern, said Gerba, a microbiologist and professor at the University of Arizona, is cross contamination: a package of meat leaks juice in a bag. The bag is unpacked, then placed back in the hot car trunk until next week's shopping trip, when the bag is filled with vegetables.
By then a horde of bacteria may line the inside of the bag and transfer to the vegetables or your hands and spread elsewhere.
“It's a gamble,” Gerba said.
While unwashed bags might not result in headline-grabbing outbreaks, Gerba said, “Our data says it may be a common risk that might be overlooked.”
Despite the study’s findings, the Cuyahoga County Health Department has not traced any food-borne illness to reusable bags, said environmental health services director John McLeod.
But as more and more shoppers are adopting reusable bags — either for environmental concerns or to stem the tide of household plastic bags — washing the totes is a good habit to adopt, said Matt Carroll, Cleveland Public Health Department director.
“If you can keep E. coli out of your house by washing the bags, then obviously you should wash the bags,” Carroll said.
A thorough washing will kill nearly all bacteria that can accumulate in the bags, said Gerba.
“There’s a lot of different factors that go into bacteria growth: moisture, heat and having the bacteria itself,” McLeod said. “We want to make sure we break that cycle.”
Jeff Heinen, of Heinen’s Fine Foods, says that although they remain a minority, more and more of his customers are taking home groceries in reusable bags.
The local chain has been selling the bags for 10 years. At first they were made of cloth; now they are made of the woven polypropylene. The bags can be hand- or machine-washed in cold or warm water on gentle cycle and hung to drip dry. Do not put the bags in the dryer.
“It’s no different than your refrigerator,” Heinen says. “You want to clean it occasionally.”
Wednesday, June 23, 2010
Author Gail Sheehy offers advice on the role we rarely see coming
Typically, this person is a married, employed, 49-year-old woman who spends an average of 20 hours a week caring for her widowed, 69-year-old mother, who does not live with her.
Author Gail Sheehy, whose best-selling “Passages” books have chronicled the life stages of the baby boomer generation, has now turned her literary attention to the role of caregivers.
Her latest title, “Passages to Caregiving: Turning Chaos into Confidence,” describes eight crucial stages, or passages, of giving care to a loved one with a life-threatening illness.
In the book, Sheehy draws on her experiences as a caregiver for her husband, magazine editor Clay Felker, who died in 2008 after battling cancer for years.
We interviewed Sheehy by phone, shortly before her May appearance in Cleveland, sponsored by Hospice of the Western Reserve, to promote her book.
Q: Why did you write this book?
A: I've written five books about passages in life. And I often talk about the wonderful second adulthood that we enter after 50. What I didn't see coming was The Call [from a doctor reporting the diagnosis of a serious illness].
It usually plunges the family member into denial, fear, confusion as you confront doctors who have many different recommendations, many different diagnoses, certainly different treatment approaches.
You don't know the medical lingo, you don't know the insurance situation of your loved one, and you're already trying to balance probably your own work.
This becomes a second job for most of us for which we are not prepared, not trained and not expecting.
Q: How can we prepare for it?
A: My best advice is if you have a sibling, talk to them, have the conversation before the crisis. Send out an e-mail and or a nice card and say, you know, “Mom or Dad is getting older and at some point they are going to need some of our help. How about we all e-mail, 'This is what I'm good at.' ”
The point is to get the conversation started. Because although we'd like to think our siblings are going to be our greatest support, our studies show they are likely to be the greatest stress. If you're the person living closest to the parent who's going to need help and you take on the whole role of primary caregiver, you can be pretty sure your sibling who lives farthest away is going to call you and say, “You don't know what you're doing.” Because they're not on the spot and they probably feel guilty.
Q: Your book talks about creating a circle of care.
A: Nobody can do this alone. The first step is to call your local area agency on aging. There's one in every state and most cities and many counties. They often have a care manager who can begin to assess the situation and tell you what the community resources are.
The second thing is when you are talking to multiple doctors and you're so confused by all their different approaches, try to pick the one you most trust and ask him three questions because you want to see if he will be your medical quarterback:
Will you help me sort through the treatment options?
Will you help me assemble a care team?
And will you address pain and other side effects of treatment?
And if the doctor says yes, you've got your medical quarterback who will help you call the plays. It will make the ride so much smoother.
If you can't find a doctor who's willing to be a partner with you and collaborate with you, you may want to find a geriatric-care manager. That's a fairly new player in the health care arena.
These are nurses or social workers trained in geriatrics who can come to your home or your loved one's home, do an assessment, walk you through the medical lingo and the territory you're in and help you choose a doctor or a hospital. Then, more important, afterward, when your loved one is home from the hospital or goes to rehab, helps you to understand that whole territory, which is so complex and has its own set of rules.
Hiring a geriatric-care manager is not covered by Medicare. It may possibly be covered by your company. But if you have to pay for it, it may be from $85 an hour to even $250 an hour, which is huge, and most people resist paying for a geriatric-care manager. But I'll tell you, a two- or three-hour consult with a geriatric-care manager may tell you more than you need to know about the next year or two of your life than any three hours that you spend with anybody else.
Unless it's an elder attorney. That's the other key person who can help you to understand what your insurance does and doesn't offer, whether your loved one qualifies for Medicaid and what you can get covered under Medicare. That's the professional team.
Then you go to work on assembling the support team. This is something caregivers have to understand: You have to ask for help. You have to realize that you deserve to ask for help. Because you need to keep on working on your own life.
So I say, let your friends know. Also people you work with, people at your church or temple, and maybe even at the local community college if they have a health services major, they may be able to provide volunteers to look in on a parent or a spouse when you can't be there.
Q: Is there a place where caregivers should draw the line?
A: Oh, definitely. One of the biggest dangers is a phase I call Playing God. If you've become really devoted, you've learned the lay of the land, you know the lingo, you've become really good at it. You begin to think that it's you who's responsible for keeping your loved one safe or alive day to day.
That's OK as long as things are going well, and you're winning. It's very satisfying to the ego. But when things go wrong, which is inevitable, some treatment will backfire or the old illness will roar back. Then if you're God, it's your fault, and if you think it's your fault, a crash of guilt will come down on you.
So you have to at some point accept that there is a God, if you believe in one, but you aren't it. No one can control the aging process or the trajectory of illness. And you need to be able to take care of yourself. At the very least you have to get out for at least an hour every day and do something pleasurable just for yourself. And nothing to do with caregiving – no fair calling in for a prescription.
You have to break the cycle of hypervigilance, because that stress hormone cycle, if it's not interrupted, will eventually become completely depleted. And if you fall into caregiver burnout, that's a disease. That's really difficult to come back from. So you need to take precaution before that happens. There's nothing to feel guilty about, because if you get sick there's nobody to take care of your loved one or yourself.
Q: How is caregiving different now, and what are the implications?
A: In our parents' time, not so many women were working. It was just assumed, it was part of socialization, that women would just be available for whoever in the family got sick first or complained the loudest.
We have not acknowledged that there is this enormous free labor pool out there called mostly women middle-aged family caregivers who wrestle with, “How do I do right by Mom or Dad or my spouse who suddenly has a life-threatening illness without sacrificing the resources I will need to keep myself solvent and socially stimulated and healthy into my old age?”
You are expected to take over when somebody comes home from the hospital for a crew of about 24 people who have specialized jobs over the course of 24 hours in a hospital. Suddenly it's all on you.
It's an enormous shock and undertaking. So you have to find ways to enlist the doctor or the charge nurse to help you – before you leave the hospital – learn as much as you can and afterward to get more help at home.
It becomes a negotiation. And what I find is that you actually have to go to the doctor all the time because they know the magic words to use to get things done.
Q: Are boomers demanding a different model?
A: It hasn't been made a major national issue, and I hope this book will start that conversation.
Q: Your book says there are positive aspects to being a caregiver to someone with a life-threatening disease.
A: This is a chance to become more intimate with a parent, even if you've been distant or estranged. You discover each other all over again as different people. You have to make that delicate transition to being more of the nurturer and authority for your parent instead of expecting them to do that for you.
In the case of my husband, we found that facing a life-threatening illness prodded us to make a dramatic change in our lives.
When he got lymphoma, the doctor said, “Because your lymphoma is very mild and inactive, I'm not even going to give you any drug, because they wouldn't necessarily improve your life span. Why don't you two go out and do something wonderful that you wouldn't have dared before and do it together?”
We worked on how to do that for the next year until my husband was able to get to what he really loved about his work without any particular title or setting – which was identifying and shaping young talent.
At the same time, his colleagues, whom he had worked for and whose careers he helped to foster, were searching the different colleges and universities to see who would be interested in having him start a magazine program of actually making magazines and not just sitting in some dusty [department] chair, and University of California at Berkeley jumped at the chance. And we tore up our lives in New York and moved to California to start that new life.
That lymphoma never came back.
A lot about illness isn't just about medicine.
Q: So being a caregiver can be a profound experience.
A: Actually, the caregiver passage is going to be one of the most memorable ones in your life. It will shape how you think about yourself: Am I a good person? Did I do all I that I could? Did I shift some of that responsibility to my sibling or somebody else?
Did I let go at the right time? That's probably the most delicate decision of all.
But that's one that can only be made if you're on the spot with your loved one and talking about where they are, where they're going and what their goals are. To keep following their lead.
If you do that and are able to guide them to a place that none of us know in a gentle and loving way, you're going to walk away guilt-free and feeling spiritually nourished.
Wednesday, June 2, 2010
Opera singer, a double lung transplant recipient, takes the stage at Cleveland Clinic conference
By Kaye Spector
Plain Dealer Health and Medical Writer
Charity Sunshine Tillemann-Dick went to her first opera, “Hansel and Gretel,” at age 4. She knew then what she wanted to do and what she wanted to be.
She now sings soaring soprano coloratura, delivering difficult passages of high, rapid notes. She mastered the technique after years of rigorous training.
She hasn't let go of her dream, even though she battled pulmonary arterial hypertension for years before undergoing open-heart surgery and a double lung transplant.
Wednesday she takes the stage at the Cleveland Clinic's Patient Experience Summit. She will dedicate her rendition of Gershwin's “Someone to Watch Over Me” to the doctors, nurses and hospital staff who saw her through it all.
The Denver resident began “building a relationship” with the Cleveland Clinic doctors shortly after she was diagnosed in 2004 at age 21.
Tillemann-Dick and her doctors in Colorado and at Johns Hopkins Hospital in Baltimore, Md., tried to treat her condition. But the possibility of a transplant always loomed. She knew she would likely have it done at the Clinic.
“My doctors told me it was the best place to go,” she said.
With pulmonary arterial hypertension, the blood vessels that supply the lungs constrict and the walls thicken, so the blood vessels can’t carry as much blood. The heart has to work harder to force the blood through and pressure builds up. There’s less blood circulating through the lungs picking up oxygen. Patients become tired, dizzy and short of breath.
Pulmonary hypertension was a “daunting prospect” for the coloratura soprano.
“The most important thing is air flow,” she said. “It’s tremendously demanding work.”
Tillemann-Dick didn’t tell many people about her condition so she could keep on singing. She wore a pump the size of a cassette tape strapped to her leg or torso.
“When I sang, it was the only time I did not feel challenged by my physical disability. I had this freakish lung capacity,” she said. “But the truth was I was very sick.”
By 2009, she was having difficulty singing. She had canceled 100 engagements in the course of a year and decided she could not continue.
“I realized I couldn’t maintain my good name as an artist,” she said.
She had the transplant at the Clinic in September and returned home at Christmastime, determined to sing again.
She took tentative steps toward music by humming. After a few weeks, she tried to sing some gentle songs: jazz, folk music. More time passed. She moved on to more demanding music: theater standards. A few weeks later, she was singing her opera repertoire. In March, she began taking lessons again with her regular voice teacher.
“Coming back to Cleveland to sing is really a dream come true, considering I’m not even a year out,” she said in a phone interview during a taxicab ride to the Intercontinental Hotel on Monday morning.
“It’s a miracle and I’m so glad to share that.”